Please Dress Me in Red
In my dual profession as an educator and health care provider, I have worked with numerous
children infected with the virus that causes AIDS. The relationships that I have had with
these special kids have been gifts in my life. They have taught me so many things, but I have
especially learned that great courage can be found in the smallest of packages. Let me tell you
about Tyler.Tyler was born infected with HIV: his mother was also infected. From the very beginning
of his life, he was dependent on medications to enable him to survive. When he was five, he had a
tube surgically inserted in a vein in his chest. This tube was connected to a pump, which he
carried in a small backpack on his back. Medications were hooked up to this pump and were
continuously supplied through this tube to his bloodstream. At times, he also needed supplemented
oxygen to support his breathing. Tyler wasn’t willing to give up one single moment of his childhood
to this deadly disease. It was not unusual to find him playing and racing around his backyard,
wearing his medicine-laden backpack and dragging his tank of oxygen behind him in his little wagon.
All of us who knew Tyler marveled at his pure joy in being alive and the energy it gave him.
Tyler’s mom often teased him by telling him that he moved so fast she needed to dress him in red.
That way, when she peered through the window to check on him playing in the yard, she could quickly
spot him. This dreaded disease eventually wore down even the likes of a little dynamo like Tyler.
He grew quite ill and, unfortunately, so did his HIV-infected mother. When it became apparent that
he wasn’t going to survive, Tyler’s mom talked to him about death. She comforted him by telling
Tyler that she was dying too, and that she would be with him soon in heaven. A few days before his
death, Tyler beckoned me over to his hospital bed and whispered, “I might die soon. I’m not scared.
When I die, please dress me in red. Mom promised she’s coming to heaven, too. I’ll be playing when
she gets there, and I want to make sure she can find me.”
children infected with the virus that causes AIDS. The relationships that I have had with
these special kids have been gifts in my life. They have taught me so many things, but I have
especially learned that great courage can be found in the smallest of packages. Let me tell you
about Tyler.Tyler was born infected with HIV: his mother was also infected. From the very beginning
of his life, he was dependent on medications to enable him to survive. When he was five, he had a
tube surgically inserted in a vein in his chest. This tube was connected to a pump, which he
carried in a small backpack on his back. Medications were hooked up to this pump and were
continuously supplied through this tube to his bloodstream. At times, he also needed supplemented
oxygen to support his breathing. Tyler wasn’t willing to give up one single moment of his childhood
to this deadly disease. It was not unusual to find him playing and racing around his backyard,
wearing his medicine-laden backpack and dragging his tank of oxygen behind him in his little wagon.
All of us who knew Tyler marveled at his pure joy in being alive and the energy it gave him.
Tyler’s mom often teased him by telling him that he moved so fast she needed to dress him in red.
That way, when she peered through the window to check on him playing in the yard, she could quickly
spot him. This dreaded disease eventually wore down even the likes of a little dynamo like Tyler.
He grew quite ill and, unfortunately, so did his HIV-infected mother. When it became apparent that
he wasn’t going to survive, Tyler’s mom talked to him about death. She comforted him by telling
Tyler that she was dying too, and that she would be with him soon in heaven. A few days before his
death, Tyler beckoned me over to his hospital bed and whispered, “I might die soon. I’m not scared.
When I die, please dress me in red. Mom promised she’s coming to heaven, too. I’ll be playing when
she gets there, and I want to make sure she can find me.”
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